Week 8

Happy birthday to me… 🎶

I’ve been dreading this day for the past six years, since my four year old nephew looked up at me and said “28. Hopey, are you going to die when you turn 28?” Because his uncle, my brother, died when he was 28 and that didn’t make sense.

I’ve called it my “Patrick Birthday,” and I knew it would be difficult, but I never imagined it would be this terrible. A few months ago I imagined the birthday as a source of solemn strength to mark how much I have grown, and to mourn that I would now be “older” than my oldest brother. That alone would have made today painful.

I’ve been dreading this day, and I’ve been mourning it all month.

Birthday.

I used to thank my mom each day on all of our birthdays, praising her for the fact that it was her birth day — the day she did all the work and a day that changed her life immensely. I just showed up.

But now there’s no Mom, and that sucks.

So many people want to celebrate with me, which is sweet and I feel loved, but I don’t want to celebrate. It’s difficult to celebrate with sorrow seeping from your eyes.

Mom made each birthday so special. Most years, she made us us a delicious cake and made the day a big deal! She was a thoughtful gift giver and she was always so excited.

This birthday is special, I suppose, in a different way. It’s sacred: I’m surrounded by people keenly interested in trying to make my birthday magical and sweet, perhaps more so than I have ever experienced before. It’s a day filled with love and gentle care and sweet reminders of my friendships and of those who love me. I won’t forget this birthday, and I will remember all the beautiful acts of kindness so many people have bestowed upon me.

It’s my Patrick birthday. I am 28. I feel old, though so many people still tell me I’m such a baby, ha.

One day, I’ll probably have a Harmony birthday. I’ll turn 51 — “fifty-fun” as we briefly called it — and I’ll be older than my mom. The solemn knowledge of that pains me. I’m not yet ready to be excited about the future, but today I do have hope.

I am loved, I am seen, and there is life and goodness all around me.

One day, I’ll be able to participate and experience the fullness of life once more. Today reminds me that life is a gift, that I am loved, and that the sun still shines.

Thank you to everyone who’s making today special 💙

2019 – Patrick’s 28th and Final Birthday

2024 – Hope’s 27th Birthday, My Last Birthday with My Mom

2025 – Mom’s 51st and Final Birthday

“Fifty Fun”
2025 – Hope’s 28th Birthday